A baby boy who was born without a nose has passed away after a two-year battle against a rare genetic disease. The little fighter captured the hearts of people around the world with his bravery and resilience in the face of adversity.
It is known that due to being born prematurely, Eli did not have time to develop the nasal cavity. This is a very rare phenomenon, when 197 million newborns have 1 baby. Compared to other children, Eli has an extraordinary energy.
Due to health complications, the baby had to undergo many surgeries, in which the first case took place when he was only 5 days old.The condition, known as congenital arhinia, is characterized by the absence of a nose and affects only a handful of people worldwide.
Mr. Jeremy Thompson – Eli’s father said that the doctor diagnosed the baby could not live more than 1 month. Therefore, the fact that the baby is celebrating his 2nd birthday is something few people dare to think about. As a happy, optimistic and smiling baby, Eli is loved by many people, even those who only know her through Facebook. Unable to speak, but Eli always knows how to signal to the doctor and parents to eat his favorite chocolate chip cookie.
His parents, who were determined to give their son the best possible care, turned to social media to share their story and raise awareness about congenital arhinia. Their Facebook page garnered thousands of followers from around the world, who followed the baby’s journey and offered support and encouragement to the family.
Sadly, after two years of fighting the disease, the baby boy passed away peacefully in his parents’ arms. The family announced his passing on their Facebook page, thanking the community for their support and expressing their gratitude for the time they had with their son.
The news of the baby’s passing has touched the hearts of people around the world, who have expressed their condolences and shared messages of love and support for the family during this difficult time.
The little boy’s story has brought attention to the challenges faced by families with rare genetic disorders and the importance of raising awareness and supporting research into these conditions. His bravery and resilience in the face of adversity will continue to inspire and touch the hearts of people around the world.
