Daniel Maples, 18 months old, unfortunately suffers from lamellar ichthyosis. This rare disease causes the top layer of thin skin to peel off faster than usual, revealing a layer of skin as thick as fish scales underneath.
The boy’s parents were forced to apply a medical jelly like Vaseline to Daniel’s skin to prevent his skin from cracking. Steve Maples, the boy’s father, said: “Daniel’s skin is very thick and about 2 months all this skin will peel off. Currently, my wife and I have to apply cream to Daniel every 4-6 hours during the day and night. Every 3 hours at night”. Besides, Daniel also has to bathe at least 3 times a day and use eye drops regularly because he can’t blink.
Steve Maples said both he and his wife have the gene for this rare syndrome. There is only a one in four chance that this disease will appear in their children, and unfortunately, poor Daniel does. Even so, Steve is confident that his son will develop normally. Just take good care of Daniel, teach him how to be confident in himself, then surely, Daniel will have a life like many others.
Ichthyosis lamellar, is a rare condition in the world. Only 1 in 600,000 people has this disease. The main cause is inherited from parents with disease genes. This disease causes the skin to be as thick as fish scales. People with this disease will have an increase in body temperature due to the inability to sweat, dry eyes.
In addition, if the disease spreads to the tips of the fingers and toes, the blood will not circulate well, and the joints of the hands will be difficult to function. If the disease spreads to the head, it will cause uneven hair growth. Currently there is no cure for this disease, the only remedy is to use a regular moisturizer.