The body of a 4-year-old boy named Brody Curtis is covered with blisters and sores that never heal. The boy has to live in excruciating pain because of epidermolysis bullosa (EB) also known as ‘butterfly skin’. The disease left Brody unable to walk or stand and will likely live to be no more than 20 years old.
The boy was wrapped from head to toe in bandages and placed in a medicated bath for about four hours, three times a week. The baby’s skin is as fragile and vulnerable as a butterfly’s wings.
Brody had to consume a lot of antibiotics and ointments every day. All of them are meant to help the boy fight the pain in his body. Brody’s family takes him to the hospital 10-20 times a year so he can be treated with blood transfusions, skin grafts…
Despite living in pain, Brody is usually very cheerful and strong. The boy’s mother said: ‘He is very strong. Brody laughs and jokes a lot . Ms. Curtis also regularly shares videos of Brody on social media so people can see the boy’s condition.
Ms Curtis said: ‘80% of the skin on Brody’s foot was covered with painful open wounds. That’s why he can’t walk on his own. Brody is also rarely eaten by mouth. The boy consumes food by means of a food pipe.’
